capp advisory board

Advancing Patient-Centered Cancer Care Through Digital Health Innovation

%

of cancer patients experience significant anxiety or depression

new cancer cases are diagnosed annually in the U.S.

%

of cancer patients struggle with treatment adherence

The Cancer Active Patient Portal (CAPP) is a digital health initiative developed by Cancer Active, Inc., designed to improve quality of life, treatment adherence, and patient-reported outcomes for people living with cancer—beginning with multiple myeloma and scalable across oncology.

CAPP integrates validated patient-reported outcome measures, symptom tracking, wellness inputs, and real-world data into a patient-friendly platform that serves:

Patients & Caregivers

Clinicians & Care Teams

Researchers & Educators

Advocacy Organizations

Industry Partners

CAPP is being developed with direct input from clinicians, researchers, behavioral health experts, movement scientists, and patient advocates to ensure it is clinically credible, ethically grounded, and truly patient-centered.

Advisory Board (Planned)

Cancer Active is in the process of formally establishing a CAPP Advisory Board to guide:

  • clinical relevance and scientific rigor
  • patient-centered design and usability
  • research integrity and evaluation strategy
  • ethical data collection and stewardship
  • cross-sector collaboration (academia, advocacy, industry

Contributors to CAPP Development (To Date)

The individuals listed below are not yet formal members of the CAPP Advisory Board.

However, each has been instrumental in shaping the vision, structure, and direction of CAPP through direct consultation, discussion, and collaboration over the past four years.

Their engagement reflects the seriousness, credibility, and multidisciplinary foundation of this initiative.

Clinical & Research Advisors (Informal):

Saad Z. Usmani

MD, MBA, FACP, FASCO

Sagar Lonial

MD, FACP, FASCO

Nina Shah

MD

Sridevi Rajeeve

MD

Betsy O’Donnell

MD

Behavioral Health, Wellness & Implementation Science:

Jennifer Bleck

PhD, MPH, NBC-HWC

Ryan Marker

PT, PhD

Travis Nemkov

PhD

Patient Advocacy, Strategy & Systems Thinking:

Marshall Worth

Strategy & Systems

Kenny Capps

JD, MPH (May 2026)

Robert A. Capps

PhD

Why This Matters

CAPP is not a theoretical product—it is being built at the intersection of:

  • lived patient experience
  • frontline clinical care
  • public health and outcomes research
  • behavioral science
  • movement and rehabilitation science
  • ethical digital health design

The informal guidance provided by the individuals above has ensured that CAPP:

  • aligns with real clinical workflows
  • Respects patient burden and variability
  • prioritizes quality of life alongside survival
  • generates data that is meaningful, not extractive

Next Phase: Formal Advisory Board Formation

Cancer Active will soon begin formal invitations to establish a standing CAPP Advisory Board.

Members will help steward the platform as it enters:

  • pilot studies
  • external funding partnerships
  • academic collaborations
  • multi-site implementation

About Cancer Active

Cancer Active, Inc. is a global patient advocacy organization dedicated to improving quality of life, treatment adherence, and health equity for people living with cancer—making quality life WITH cancer possible.

This listing reflects individuals who have contributed insight and guidance to the development of CAPP. Inclusion does not imply formal advisory board membership or institutional endorsement.

Interest in Serving on the CAPP Advisory Board

Cancer Active is beginning conversations with a small number of clinicians, researchers, patient advocates, and industry leaders interested in helping guide the next phase of the Cancer Active Patient Portal.

Advisory Board members will help inform:

  • clinical and scientific direction
  • patient-centered design and evaluation
  • ethical data stewardship
  • collaborative research and implementation strategy

At this stage, we welcome expressions of interest in two ways:

Advisory Interest

For individuals interested in learning more about a potential role on the CAPP Advisory Board.

Strategic or Research Collaboration

For individuals interested in contributing through research, evaluation, clinical insight, implementation, or partnership—without a formal advisory role.

If either of these resonate, we invite you to connect:

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